Synapse
⌘+K
Synapse
PulseExploreClubsResearchersJournals
Instagram
HomeClubsExplore
December 8, 2025BloodOpen Access

Support isn't always supportive: Relational and cultural misalignment in black sickle cell disease adult caregiving norms

View Full Paper
Ask AI
Bookmark
Share

Authors

PAPersis AyehSJSeethal A. Jacob

Discussion

Loading...

Member takes

Overview

Qualitative analysis finds emotional support gaps for B/AA caregivers in sickle cell disease, suggesting a need for better caregiving approaches.

Key Points

  • Support needs often remain unmet, with caregivers navigating emotional and cultural challenges related to sickle cell disease.
  • Emotional support is frequently described as conditional, reactive, and tied to moments of illness among caregivers.
  • Social cognitive theory informed the approach, highlighting how caregivers adjust their help-seeking behaviors and expectations.
  • Training providers on relational and spiritual values can improve chronic care delivery for B/AA caregiving contexts.

Cite This Study

Ayeh et al. (2025) studied this question.

synapsesocial.com/papers/69362f7f4fa91c937236e53bhttps://doi.org/10.1182/blood-2025-2662
View Full Paper
Ask AI
Bookmark
Share

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Unpredictability of caregiver gaps in multiple myeloma: Results from a survey of >1000 patients2025
  2. 2Caregiving for Adults With Down Syndrome: Caregiver Experiences and Support Needs2025
  3. 3Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises2025
  4. 4Patient outcomes for sickle cell disease with support staff-driven interventions: A scoping review2025
  5. 5“Suffering in Silence”: Caregiver and medical team experiences on psychosocial screening among pediatric patients with hematologic malignancies2025