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September 10, 2025Journal of Applied Research in Intellectual Disabilities

Caregiving for Adults With Down Syndrome: Caregiver Experiences and Support Needs

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Authors

ABAmy E. BoddeJBJoanna Veazey BrooksBFBethany Forseth

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Overview

Qualitative analysis explores caregiver experiences and support needs in adults with down syndrome.

Key Points

  • Caregiving responsibilities are often perceived as constant and unceasing, creating significant caregiver stress.
  • In depth interviews revealed that 17 family caregivers identified social supports as vital for overall well-being.
  • Thematic analysis highlighted key areas such as future planning, social supports, and the importance of respite care.
  • Targeting support needs like transportation options and transition planning may improve caregiver well-being significantly.

Cite This Study

Bodde et al. (2025) studied this question.

synapsesocial.com/papers/68d413f8713b0b5dfea61c93https://doi.org/10.1111/jar.70118
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Caregiver Interviews Regarding Health in Down Syndrome2025
  2. 2Perspectives of Family Caregivers of People With Alzheimer’s Disease on Caregiving Experience and Needs: A Qualitative Study2025
  3. 3Support isn't always supportive: Relational and cultural misalignment in black sickle cell disease adult caregiving norms2025
  4. 4Experiences of adult children caring for parents aging in place2025
  5. 5Experiences of Formal and Informal Support Among Adult-Daughter Caregivers of People With Dementia in Sweden: A Qualitative Study2025