Synapse
⌘+K
Synapse
PulseExploreClubsResearchersJournals
Instagram
HomeClubsExplore
June 6, 2026American Journal of HematologyOpen Access

Exploring the Burden on Patients Living With and Receiving Treatment for Immune Thrombocytopenia ( ITP ): Patient and Physician Perceptions From the ITP World Impact Survey (I‐ WISh ) 2.0

View Full Paper
Ask AI
Bookmark
Share

Authors

NCNichola CooperJBJames BusselWGW G Ghanima

Discussion

Loading...

Member takes

Overview

Randomized trial explores treatment-related burdens in immune thrombocytopenia, highlighting patient preferences.

Key Points

  • This research aims to understand patients' and physicians' perceptions of the impact of immune thrombocytopenia (ITP) symptoms and treatments.
  • Surveyed 1018 patients and 431 physicians across 15 countries
  • Characterized effects of ITP on daily activities, emotional wellbeing, and treatment satisfaction
  • Analyzed alignment between patient and physician perceptions on symptoms and treatment goals.
  • One-third of patients reported a high impact of ITP on daily activities and social life
  • 54% reported high emotional wellbeing impact; 48% of patients cited fatigue as problematic versus 29% of physicians
  • Two-thirds of patients preferred limiting time on treatment, despite most being satisfied with existing options.

Cite This Study

Cooper et al. (2026) studied this question.

synapsesocial.com/papers/6a23bb7971a5da9775e76efchttps://doi.org/10.1002/ajh.70379
View Full Paper
Ask AI
Bookmark
Share

Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Patient survey in immune thrombocytopenia (<scp>ITP</scp>): Identifying unmet needs related to treatment and disease control in patients living in the United States2025
  2. 2A Qualitative Study on Patient Experience with Signs, Symptoms, and Daily Impacts of Immune Thrombocytopenia2025
  3. 3Clinician’s knowledge and awareness of patient-reported outcomes in immune thrombocytopenia: Results of a national survey (ITP NET, GIMEMA Working Group Anemia and Thrombocytopenia)2025
  4. 4A Single-Center Experience of Immune Thrombocytopenic Purpura: Disease Characteristics, Treatment Options, Response to Treatment, and Side Effects2025 · 1 citations
  5. 5Shared decision making for immune thrombocytopenia (ITP) treatment: Data from the ITP natural history study registry2025