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December 8, 2025BloodOpen Access

Patient and clinician perspectives on the diagnosis and management of polycythemia vera: Results from concurrent surveys

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Authors

AGAaron T. GerdsCPChristina PersaudJMJonathan Moss

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Overview

Concurrent surveys reveal discordance in diagnostic accuracy and treatment goals in polycythemia vera care, highlighting gaps in patient education.

Key Points

  • Patients reported lower confidence in diagnostic timeliness compared to clinicians, with only 64% agreeing on quick diagnosis.
  • 78% of clinicians prioritized improving quality of life; however, only 42% of patients included this in their top treatment goals.
  • Shared decision-making gaps revealed only 61% of patients felt their treatment goals were considered by providers.
  • Nearly half of patients lacked sufficient education on treatment options, reinforcing the need for enhanced clinician-patient communication.

Cite This Study

Gerds et al. (2025) studied this question.

synapsesocial.com/papers/69362f7f4fa91c937236e540https://doi.org/10.1182/blood-2025-2653
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