What type of study is this?

This is a Human Clinical Trial study.

December 8, 2025BloodOpen Access

Bridging the gap: Global caregiver perspectives on awareness, motivators, and barriers to clinical trial participation in sickle cell disease

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Authors

JMJohnny MahlanguNational Health Laboratory Service DFDarren Fleetwood ETEmma Su Zan TanThe University of Sydney

Discussion

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Implication

Insights reveal barriers and motivators for clinical trial participation among caregivers of adolescents with sickle cell disease, highlighting gaps in awareness.

Key Points

Low clinical trial awareness among caregivers is a major barrier to participation in managing sickle cell disease symptoms.
45% highlighted safety measures as crucial information when deciding on clinical trials for adolescents with SCD.
The LISTEN Survey collected responses from 199 caregivers across various geographies regarding clinical trial involvement.
Enhancing caregiver engagement through targeted education might improve participation rates in clinical trials.

Cite This Study

Mahlangu et al. (2025) studied this question.

synapsesocial.com/papers/69362f514fa91c937236d99a https://doi.org/10.1182/blood-2025-2952

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Implication

Insights reveal barriers and motivators for clinical trial participation among caregivers of adolescents with sickle cell disease, highlighting gaps in awareness.

Bridging the gap: Global caregiver perspectives on awareness, motivators, and barriers to clinical trial participation in sickle cell disease

Discussion

Member takes

Implication

Key Points

Cite This Study

Bridging the gap: Global caregiver perspectives on awareness, motivators, and barriers to clinical trial participation in sickle cell disease

Discussion

Member takes

Implication

Key Points

Cite This Study

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Also Consider