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December 8, 2025BloodOpen Access

Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

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Authors

JBJosefina Aparecida Pellegrini BragaNFNicholas R. Faris

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Overview

User-centered design improves transition processes for adolescents and young adults with sickle cell disease in Brazil, suggesting significant cultural adaptations are necessary.

Key Points

  • Transition processes for young adults with sickle cell disease improved through user-centered design.
  • Needs assessment used mixed-methods to engage Brazilian youth and providers for tailored solutions.
  • A collaborative approach led to the co-design of a transition toolkit addressing local healthcare systems.
  • Culturally sensitive modifications ensure meaningful guidance during the transition to adult care.

Cite This Study

Braga et al. (2025) studied this question.

synapsesocial.com/papers/69362f444fa91c937236d57fhttps://doi.org/10.1182/blood-2025-2589
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis2025
  2. 2Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease2025
  3. 3Designing healthcare interventions: Insights from a participatory co-design approach2025
  4. 4Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions2025
  5. 5LEFT IN THE DARK, YET THE KEY TO SUCCESS: A PATIENT-LED SCOPING REVIEW OF PARENTAL NEEDS AND PERSPECTIVES SURROUNDING THE HEALTHCARE TRANSITION OF CHRONICALLY-ILL ADOLESCENTS AND YOUNG ADULTS2026