What question did this study set out to answer?

To establish a consensus on competencies required for adult sickle cell disease specialists and improve access to quality care.

December 8, 2025Blood

National alliance of sickle cell centers consensus recommendations for defining an adult sickle cell disease specialist

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Consensus defines competencies for adult sickle cell disease specialists, suggesting enhanced care accessibility and management.

To establish a consensus on competencies required for adult sickle cell disease specialists and improve access to quality care.
3-step modified Delphi consensus process involving 17 SCD specialists.
Panel developed and refined statements defining an adult SCD specialist.
Final voting survey for consensus validation among NASCC center leads.
90.2% consensus on minimum criteria for a SCD specialist.
100% agreement on disease modifying therapies and iron overload management.
Consensus on the importance of collaborative care and community engagement.

Coyne et al. (2025) studied this question.

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