September 25, 2025HRB Open ResearchOpen Access

Engaging Children and Young People in Pediatric Palliative Care Research: A Scoping Review Protocol of Patient and Public Involvement Practices

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Discussion

Scoping review identifies patient and public involvement practices in pediatric palliative care, revealing key insights into youth participation.

This scoping review maps existing literature on youth involvement in pediatric palliative care research, detailing effective practices for engagement.
The review will examine various types and levels of patient and public involvement of children and young people in research settings.
Using the Joanna Briggs Institute methodology, the review will analyze English-language empirical studies on children's involvement in palliative care.
The findings aim to enhance ethical considerations and inform future models for inclusive youth participation in pediatric research.

Molati et al. (2025) studied this question.

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Scoping review identifies patient and public involvement practices in pediatric palliative care, revealing key insights into youth participation.