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September 18, 2025Journal of Clinical EpidemiologyOpen Access

Citizen Science as an Approach for Engaging Underrepresented Communities in Health Research to Generate Research Questions and Priorities

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Authors

CPCodie A. PrimeauAHAlison M. HoensSTStephanie TherrienSimon Fraser University

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Implication

Commentary reveals how citizen science enhances engagement of underrepresented communities in health research, indicating potential to advance health equity.

Key Points

  • Citizen science enhances engagement of underrepresented communities, promoting inclusion in health research processes.
  • A case example shows how 2S/LGBTQQIA+ individuals co-develop research questions about chronic pain using citizen science methods.
  • Incorporating citizen science principles supports transparent and collaborative research that reflects community needs.
  • This approach highlights the flexibility of citizen science to advance health equity across various health domains.

Cite This Study

Primeau et al. (2025) studied this question.

synapsesocial.com/papers/68d433b0713b0b5dfea7353ehttps://doi.org/10.1016/j.jclinepi.2025.111977
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Citizen science for research in public health: perspective2025 · 4 citations
  2. 210 recommendations for strengthening citizen science for improved societal and ecological outcomes: A co-produced analysis of challenges and opportunities in the 21<sup>st</sup> century2025
  3. 3A Scoping Review of Health‐Related Citizen Science Projects Involving Indigenous Peoples in Australia and Internationally2025
  4. 4Reframing Citizen Participation: Turning Barriers into Guiding Enablers2025 · 1 citations
  5. 5Citizen-Researchers in Action: Tackling Health Inequities2025