Family and Caregiver Quality of Life in Pediatric Neuromuscular Diseases: Psychosocial and Disease-related Predictors

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Caregivers of children with neuromuscular diseases experience medium to low quality of life, largely influenced by psychosocial factors.
Multiple regression analysis identified family resources and caregiver's age as key predictors of quality of life in families.
Caregivers reported feeling low family resources, but many showed good psychological adaptation and received social support.
Quality of life was notably affected by the child's functional dependence and accessibility to pharmacological treatment options.

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Cross-sectional analysis reveals psychosocial factors affecting quality of life in caregivers of children with neuromuscular diseases.

Ortega et al. (2025) studied this question.

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