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September 10, 2025BMC Palliative CareOpen Access

Knowledge, attitudes, and representations of caregivers of individuals with major neurocognitive disorders regarding palliative and end-of-life care: a narrative literature review

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Authors

RPRoxane PellerinDTDiane TappCFCatherine Filion

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Overview

Narrative literature review reveals caregivers' limited knowledge of end-of-life care practices, indicating areas for targeted education.

Key Points

  • Caregivers show a general understanding of palliative care but have limited knowledge of specific end-of-life care practices.
  • The review highlights disparities in study availability on palliative care practices, particularly advance care planning.
  • Ambivalent attitudes were observed among caregivers regarding various end-of-life care practices, necessitating further research.
  • Improving caregivers' knowledge and support in decision-making is essential for enhancing care quality for individuals with major neurocognitive disorders.

Cite This Study

Pellerin et al. (2025) studied this question.

synapsesocial.com/papers/68c24317b210217d647a5091https://doi.org/10.1186/s12904-025-01862-8
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