August 22, 2025Open Access

Exploring the sickle cell disease knowledge of premarital counseling team members of faith groups; a multi-center mixed-methods study

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Mixed-methods study reveals critical gaps in sickle cell disease knowledge among faith leaders, suggesting a need for improved education.

Overall, 95.8% of participants had heard of sickle cell disease, but knowledge about its incidence was only 20.9%.
Participants’ knowledge score regarding SCD was fair at 51.1%, with an excellent score of 91.5% for screening tests.
Mixed-methods approach utilized questionnaires and interviews, collecting data from 142 respondents and 18 interviews.
Highlighting the necessity for standardized premarital counseling protocols and targeted genetic literacy programs for faith leaders.

Bilam et al. (2025) studied this question.

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