Exploratory study reveals unmet needs of families caring for children with medical complexity, suggesting improved care integration.
Key Points
Families with children experiencing neurodevelopmental disorders face significant challenges accessing integrated care services, impacting their quality of life.
Caregivers reported high unmet needs due to fragmented healthcare systems, contributing to emotional and financial strain.
The study employed mixed methods to gather insights from 67 caregivers, including semi-structured interviews, focusing on their experiences and needs.
Findings support a shift toward needs-based care coordination models to enhance support and quality of life for families with children having medical complexities.