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August 12, 2025

Patient- and Caregiver-Identified Goals for Advance Care Planning in Patients With Dementia or Cognitive Impairment.

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Authors

KRKristin L. RisingAGAngela M. GerolamoNSNazanin Sarpoulaki

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Overview

Qualitative study identifies key outcomes for advance care planning in dementia patients, suggesting focus on quality of life rather than solely medical goals.

Key Points

  • Most individuals with cognitive impairment do not engage in advance care planning discussions, indicating a gap in care.
  • Participants identified 23 important outcome categories for advance care planning, primarily focusing on quality of life goals.
  • The majority of identified outcomes (86%) relate to quality of life rather than healthcare specifics.
  • Developing a person-centered advance care planning tool can improve decision-making for patients and caregivers.

Cite This Study

Rising et al. (2025) studied this question.

synapsesocial.com/papers/689e03e0d61984b91e13ce3ehttps://doi.org/10.1177/14713012251361969
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 172 The optimal versus feasible approach of advance care planning in dementia2025
  2. 2A Rapid Review of Advance Care Planning Interventions, Strategies, and Communication Approaches in Dementia Care2025
  3. 3Communicative practices used by health and social care professionals, older adults and informal carers during advance care planning conversations: systematic review of qualitative evidence and narrative synthesis.2025
  4. 4Advance Care Planning in German General Practice: A Longitudinal Qualitative Study on Patients' Expectations and Experiences2025 · 2 citations
  5. 5How to Implement Advance Care Planning for People With Dementia: A Scoping Review2025